Happy Birthday

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3 years ago

Today my little prince turned the first 5 years of life. 5 years ago life changed completely, it was time to fight even more for the future of our son. This birthday we celebrate as a family, as they say: dad, mom and baby, in addition to a cat that we have as a pet. The pandemic has not let it be more. And not only the pandemic, now I comment.

This is how it all began

His first birthday was celebrated when he was 1 year old. At that time everyone from the neighborhood was invited, the house full of children, and yours, who still can't walk, is sitting on the floor, crying for the dawn, who doesn't know what is happening at all. Cousins, uncles, grandparents and the whole family come to celebrate what would be their first little party. Everyone contributed a little and the party was perfect, kake, ice cream, candy, piñata, soda, sweets. The children of the neighborhood were happy. Yours, trying to survive so much madness, photos, everyone's affections and a stress that can't stand it. In the end everything works out. Madness comes after everyone leaves the house and you look around what is left of it. Cleaning begins. This first birthday, many friends told us that it was not celebrated. The reason: The child barely enjoys it and will literally remember NOTHING. You always want to do it, out of illusion, but after time passes, you realize that they were 100% right. Better to buy him toys, clothes or other necessary items, than to spend a whole fortune on a party for others. At least now we see it that way. What was good to remember were the studio photos that were shot on that occasion.

The beginning of a nightmare

Just before his second birthday, with a few months to go before his birthday, he begins to show signs of weakness in his arms. After analysis, tests, endless hospitalizations, it is concluded that he has a Chronic Demyelinating Inflammatory Polineuropathyy (CIDP) and life changes. Obviously the birthday that year and the next could not be at all. Between physiotherapies and hospitals you couldn't think of anything else. So that specific day was spent with the family and with specific gifts.

 4 years

Just when we wanted to celebrate his birthday in 2020, this unpleasant situation arrives that it forces us to maintain the distance between everyone. Celebrating her birthday discreetly again was the only option. Children cannot be exposed to prevent them from getting sick. So a phone call or video call with his cousins ​​was the option. This is how the planet was, so we were not the exception.

5 years - 17/9/21

This year, without hospitals and without being able to do physiotherapy, because everything was destined to the current situation for months, if we decided to throw some study photos, in an outdoor environment. All the health measures were taken, and we went out with the child to shoot some beautiful photos. Very professional photography, and the quality of the photos proves it. Even the cat took photos.

We also wanted to make him a small birthday, between us, so that he could enjoy it to the fullest. For about 3 months he has been pending his birthday, constantly asking how many days are left to turn 5, and there were still months !. We did the coordination of everything, the kake, the piñata, the gifts, the balloons, sodas and decorations. This week I spend counting the days, that if there are 5 days, 4 days, 3 days left ... that if tomorrow is my birthday and we are going to go to bed early because I want dawn already. It reminds me of when I was a kid that I used that technique of falling asleep super early when I wanted time to fly by. So much so, that since 2am he was already awake and wanted to party, it was already his birthday. At 4 am we got up to prepare everything we had in the room, because we knew that he was going to get up straight to find his party.

At 8 am he wakes up and looks at the window and says: "It's daytime!" We know what it means to get the party started. We sing congratulations to him and he bolts into the living room. What is your surprise when you see everything prepared for a birthday, the kake, the soft drinks, the decorations, the piñata and the balloons. We dressed him and did not delay the matter any longer. This birthday was the first one I would have memories of, after having been through so much. Sing congratulations, blow out the candles, make a wish: "He wants a car" another one! We chopped the kake and enjoyed it, and we even put the cat in the piñata in the absence of other children. We video-called his grandparents, and the cousins ​​have spent the day calling and sending him congratulations. He has enjoyed the whole day, he does not get tired.

Personal photo, taken with my cell phone

To end.

We are very happy that this year we have been able to make your birthday wishes come true, at least with us at home. He was very happy and it shows that he is super happy. We hope that next year we can invite their cousins ​​and their friends. School starts this year, so there will be more for sure.

Credits:

All photos are personal, taken with my cell phone

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3 years ago

Comments

Birthdays are always so much work, before, during and after, but the joy of seeing our children happy is priceless.

I didn't know about this disease, I did some research after reading your post. I'm sorry your child's life is going to be more difficult than usual but he is lucky to have parents who love him and that is the greatest blessing.

Trust that better times will come, thank you for opening your heart and letting me in.

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3 years ago

Thank you very much friend for passing friend. You even went searching the internet about the disease, which says a lot about you. In truth, it is a very rare disease in the world, barely 1 / 200,000 children suffer from it. Luckily it has not gotten much worse, it has remained stable. The pandemic hasn't helped one bit, but we have faith that it can come through. Again, thanks for everything friend. Good night.

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3 years ago

For what it's worth, I recently read in a book that each soul before incarnating decided the challenges it will face in life and the more difficult the better because it allows them to settle karmas and evolve spiritually faster.

So your baby chose them and he is a hero just for receiving and accepting his destiny. It has been a pleasure and we will stay in touch.

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3 years ago

For what it's worth, I recently read in a book that each soul before incarnating decided the challenges it will face in life and the more difficult the better because it allows them to settle karmas and evolve spiritually faster.

So your baby chose them and he is a hero just for receiving and accepting his destiny. It has been a pleasure and we will stay in touch.

You just touched my soul with your words, Thank you! We are in touch. The pleasure is mine

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3 years ago

Celebrar el cumpleaños de los hijos es el anhelo de todo padre y es muy cierto eso de que no lo disfrutan mucho. Pero ya que es nuestra ilusión celebrarcelo por lo menos nos quedamos con ese gustico de festejarlo en grande.

Ya ves le pudiste celebrar su primer cumpleaños y para los otros que según el si disfrutaría no se había podido.

Algo así en cuanto a lo de celebración me paso con mis hijas le hice su primer cumpleaños en grande y ya los siguientes por una u otra cosa no se pudieron hacer así.

En cuanto a todo lo que ha tenido que vivir tu tesorito, se que es fuerte he visto algunas historias así, lo importante es que lo llenen de mucho amor, amarse de suma paciencia y hacer todo lo posible y lo imposible para que se valla recuperando.

Hace días también publiqué, que con mucho esfuerzo le celebré sus 8 años a mi Princesa. Si puedes te pasas por el artículo.

Muchas bendiciones para tu familia.

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3 years ago

Gracias amiga. Poco a poco vamos saliendo adelante. El niño en sí es una bendición, es super inteligente, una esponja. Lástima que la vida le jugo una mala pasada, y está aprendiendo a vivir con su discapacidad. El CIDP según he buscado en Internet y leído comentarios de personas que lo padecen, después de un buen tratamiento con inyección de inmunoglobinas a muchos se la redime por un tiempo y recuperan sus fuerzas. Pasan años antes de una recaída. Pero lamentablemente llegó la pandemia y todo se complicó más. Se le intentó poner en dos ocasionen pero no se le cogía la vena al ser muy pequeño en aquel entonces. Ahora esperando que pase la pandemia, abran los hospitales a su trabajo normal y pueda ponérsela para ver si mejora. Gracias por comentar.

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3 years ago

Ojalá no se le dé muchas largas y si puedan ponerle el tratamiento pronto.

Eso es importante llenarse de conocimientos sobre el tema, para sobrellevar mejor toda esa situación.

Los niños aprenden todo lo que ven. Si que son una bendición.

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3 years ago

Your story of your son is so touching that I felt I was just there with you during the happy times and the ordeals too. I pray for your son's healing and I believe he will grow up with much love from you and your whole family.

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3 years ago

Amazing words. Thanks. It means a lot to me. 🙏. Thanks for stopping by.

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3 years ago

You are welcome :)

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3 years ago

I'm teary-eyed, I'm a Physiotherapist and I can totally relate to your predicament about his condition. We have patients like him and our empathy always goes to both, the patient and the parents. You are such an amazing father and I pray you will never grow tired and weary for him and your family. Thank you so much for bringing such a wonderful celebration for his birthday. God bless you and your family!

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3 years ago

Thank you for your comment. The truth is that the world is small, and that we are all connected. It really has been through a lot, just 3 years ago this nightmare began. The pandemic has come to get in the way of their treatment. Thank you for being what you are and transmitting your help and knowledge to those who need it most. My son has regained the strength of his hands a little, but his left hand can barely move his wrist and his fingers, he lagged behind. With the right if he can perform different actions, but not quite well. It has also affected his feet and the way he walks, although to a lesser extent. We support him in everything and try to make him happy every moment. Thanks for the support, it means a lot to us. I also have tears in my eyes right now. A hug.

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3 years ago

Exercise is always the key for motor function development, encourage him to use the weak side more, and it is better to do the exercise in the early morning or late afternoon when the environment is a bit cooler. Patients like him fatigues easily in hot weather conditions so timing is important too.. All the best for your baby boy and everyone!

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3 years ago

So we do friend. We try to make him use his left hand more, to try to use his little fingers. It is a matter of patience and understanding. Thanks for the tips! Have a great day.

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3 years ago

Happiest birthday to your awesome kid 🤗. May God pour out blessings upin blessings to your fam.

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3 years ago

Thanks! 💓🙏

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3 years ago

Happy birthday to your son Infinity! A very touching story, best wishes to your son and family. A really nice looking cake too!

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3 years ago

cake

Thanks from my heart. The cake was exquisite, as seen in the photo, it shows off its shape, chocolate and almonds with chocolates

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3 years ago