Did you know that TMAU/PATM Sufferers, Sacrifice a Lot?

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3 years ago
Topics: Awareness

How much do you know about TMAU/PATM ? or are you even familiar about it? Maybe you are suffering to this but you didn't know. Did you know that a lot of people suffering from this? and treated badly?

Trimethylaminuria(TMAU) is an uncommon condition that causes an unpleasant, fishy smell.It's also called "fish odour syndrome". Sometimes its cause by faulty genes that a person inherits from their parents, but this isn't always the case.(www.nhs.uk)

Moreover, according to Health Europa, TMAU or fish odor syndrome is an inherent error metabolism that occurs due to ruptures in the FMO3 gene. The condition causes permanent, life changing body odour that persist irresspective of impeccable hygiene and a clean diet.

However, People Are Allergic To Me (PATM) is defined as a condtion causing people near sufferer exhibit sensitivity reactions such as rubbing their nose and eye, sniffing sneezing, coughing and clearing their throat. (www.biorxiv.org.)

These TMAU/PATM is a mal-odor or body odor disease that a lot of people suffering from this. The odor is coming from the different parts of their body-underarms, mouth (halitosis), fecal odor, excessive sweating, gut war, or sometimes because of the hormonal imbalance, period, and too much stress.

Some sufferers committed suicide becuase of too much emotional pain. They feel like no one can understand them that even their family can't understand them and don't believe them. This is a rare and serious disease because it cause people life.Sufferers cant imagine their life living in an normal place with this condition they're only considering one place as their comfort place its their own room.Yes they wanted to be alone because when they going outside their room a lot of people judge them, embarass them, saying unhygienic people. This is too much for them .Did you know that some sufferer stop their studies, quit their work, ashamed to get employed, afraid/ashamed to enter into relationship, its all because of everyday bullying , disgusting reactions, not understood, feeling low about theirself . See? some of them feeling unworthy to live, and unworthy to be love. A lot of them don't have the courage to pursue their dreams, some of them isolated themselves.

They are also human too that need to be accepted and embrace in the society because this problems cannot define them as a good citizen. They also deserve happiness, deserve to be known as human too.

If just could people knew about this as condition or acknowledge this as disease not as unhygienic people maybe they could stop bullying sufferers.If they could just knew that this disease has no treatment yet but what can only sufferes do is to lessen the odor by some treatment by avoiding some foods that could increase their odor, everyday exercise, diet, taking probiotics, and using less ph soap and others.

Stop bullying sufferers for they dont want this to happen to them.Did you know that they are more hygienic than other people out there? they take a bath three times a day using different branded soap, branded deodorant, brushing their teeth more than 3 times a day using branded toothpaste, regular consultation to the doctor for taking some test to their organs, stomach, throat and other part of their body.See? A lot of them spend a lot of money just to get healed but some doctors couldn't explain also they just prescribing supplement just to lessen the odor. Suferers wanted concrete solution to this but it seems that is not their lucky day yet. Sufferers wanted miracle from God, justice for them, for they don't deserve to suffer all their life. Sufferers are hoping people to understand them more for they themselves wanted to be cure more than people do. As you can see they are trying everything just to get rid of their problems.

Because all people are obliged to use facemask and face shield sufferers have the chance to go around but reactions are still there but not that often.It gives them relief but still they wanted to get totally free from this.

Did you know that people sufferring from this considered themselve as luckily but unluckily.They are lucky because are still alive, healthy, and have great talents, unlucky because they can't show theirself to the world. They feel like they are not normal people because of the bad odor that cause them to isolate themselve.

Its hard for them to make a friend with other people because they feel like they are not accepted to the group.They feel like they are causing discomfort and make an awkward moment to the group.

If you are one of the bullying you need to stop it Why? They don't need your judgment, not your sympathy, they just need understanding, being aware of their conditions. They just want freedom from their self, freedom outside their comfort place, freedom to conquer the world, freedom to feel loved, and freedom to be happy as normal people do.

Hellow Sufferers! Miracle is coming! Keep fighthing!

In Jeremiah 29:11 "For I know the plans I have for you,"declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."

Psalm 73:26 "There is always hope"

Isaiah 41:10 "FEAR NOT for I am with you; be not dismayed, for I am your God ; I will STRENGTHEN you, I will HELP you, I will UPHOLD you with my rigtheous hand ."

Psalm 42:5 " Why my soul are you so downcast? Why so disturbed within me? PUT YOUR HOPE IN GOD"

ROMANS 5:3 "HOPE does not disappoint us, because GOD has poured out his love into our hearts by the Holy Spirit, whom he has given us."

Psalm 77:14 "YOU ARE THE GOD WHO PERFORMS MIRACLES"

CHEERS Sufferers, for God is working in your life.Keep praying for miracles. Just believe and trust for God is God.Nothing is impossible with Him.

Behold for this is not the end of life.Consider this as blessings in disguise.

GODBLESS YOU ALL!

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3 years ago
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parang nahihiya ako doon ate.

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3 years ago

Sufferer here😢 Send mo sa GC bhe

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3 years ago