Butterfly Children

Butterflies hurt every touch of children.

You’ve probably had a chance to hear this slogan, but you may not quite understand what it means.

Butterfly children suffer from a rare and severe genetic disease characterized by severe pain with each touch due to excessive skin sensitivity.

Even the simplest hug can hurt those suffering from this disease, and we can help them with the right approach, even if we show that we are without prejudice.

Briefly about the disease

It is not easy to deal with this disease, especially in our environment and society where there is mutual blame. People do not understand what kind of disease it is, so they often come across staring and looking because they do not understand what it is about and they think that the child is burnt or similar. The environment should certainly show more understanding for those suffering from this disease. Butterfly children suffer from bullous epidermolysis, a disease characterized by strong sensitivity of the skin, and in some patients also mucous membranes, with the formation of blisters and wounds. The skin is sensitive to the slightest pressure, rubbing and touch, so painful wounds such as burns can easily occur. There are three basic types or types of diseases, which differ in the depth of separation of the skin layers. It is characteristic that all diseases that belong to hereditary bullous epidermolysis occur due to a congenital lack of various proteins in the skin. These proteins, or proteins, are responsible for connecting different layers and cells in the skin. Due to the change in the quantity and / or quality (structure) of individual proteins, different layers in the skin and mucous membranes separate. However, regardless of the severity of the disease, patients can still engage in various activities and lead, conditionally speaking, a normal life. When the family and the environment accept this disease, they can live with it normally. Children can go and sleep with friends and engage in various activities. Parents should know that they should not be too afraid of injuries and behave too protectively. Even if an accident happens and the skin peels off, it will heal in a few days and get better. Such injuries are a part of the life of butterfly children, but that does not prevent them from participating in various activities. - They are engaged in various activities, learn languages ​​and work on the computer quite normally. They can best determine for themselves what they can and cannot do, and thus set their own limits. Butterflies need a lot of support from the environment in the form of understanding and conversation, and if we just listen to them, we will help a lot.

Children Butterflies from Serbia